Premieres Tuesday, June 28
at Red Hat Summit, Moscone West Level 3
The open source future of health care, through the lens of brain cancer patients and their open medical data
The Open Patient tells the story of 2 brain cancer patients who, by accessing and sharing their medical data, turned their crises into a movement.
Through their advocacy for open healthcare data standards—along with the innovative work of the OpenNotes organization—millions of patients can take control of their healthcare.
Imagine the power of sharing 200GB of data per patient
Thanks to a relentless curiosity and a close connection with his doctors, Steven Keating collected an abundance of health data—including video of his surgery, his sequenced genome, and raw data from his brain scans. To date, he’s gathered and shared more than 200GB of his own medical data. Patients and doctors can now use that data to make better healthcare decisions.
And that’s the heart of the open healthcare movement: improving outcomes by engaging more patients and doctors with more open medical data.
Building an army for open source
But open healthcare doesn’t just improve treatments. It also creates communities that work together to support each other during an impossibly difficult time. That’s exactly with The Liz Army does. By sharing her experience with brain cancer, Liz Salmi also gave thousands of patients like her a place to connect, discuss treatments, and get emotional support from others who know what they’re going through. Through this channel, Liz also advocates for the kind of open data sharing that Steven supports. In fact, her community has come to call her “The Open Source Patient.”
A groundswell of change in healthcare: OpenNotes
If Liz and Steven represent the patient-side of open healthcare, OpenNotes is where advocacy turns into real results. In 2010, more than 100 primary care doctors from 3 diverse US medical institutions began sharing notes online with their patients. The results were increased efficiency, better communication, and most important, engaged patients. Now, these results have started a movement to let patients to easily read notes written about their care, and to encourage greater transparency with medical records. Today, more than 8 million patients have access to their clinicians’ notes.
Join the movement. Demand open healthcare.
You can locate your own health records and download them electronically at The Blue Button Connector. Make medical discoveries possible by participating in research studies via the Institute of Translational Health Services, or find a match at ResearchMatch.
|THEATER DETAILS||Open Source Stories Theater
Moscone West, Level 3
Open daily, 10 a.m. – 6 p.m.
|Robotics meet and greet
Wed Jun 29, 11 a.m.
Richard Hulskes & Bram Geenen, co-founders, Wevolver and members, InMoov Robots for Good
Kevin Watters, KMW Technology, MyRobotLab committer
|SparkFun meet and greet
Wed Jun 29, 4:30 p.m.
Nathan Seidle, SparkFun
|Girl Develop It meet and greet
Thu Jun 30, 4:30 p.m.
Corinne Warnshuis, Girl Develop It